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  4. Curiosity in cholestyramine ever since hearing about it in the podcast that Chris did with Dr. Shoemaker, and then it was again mentioned in the material for the 3-year-old female who had elevated C18 and C18-1 and that’s just the patient who she ended up having chronic inflammatory response syndrome. And she was given cholestyramine, moved out of a moldy environment and improved. Looking into cholestyramine, all you’ve come across is its use for reducing cholesterol. And on a different note the Natural Treatment Centers for Environmental Disease talks about there being no scientific studies on it actually being able to remove mycotoxins from the body and how its success historically is likely to have been placebo. Can we share our knowledge about this and point us in the direction of some good information for further investigation?

Curiosity in cholestyramine ever since hearing about it in the podcast that Chris did with Dr. Shoemaker, and then it was again mentioned in the material for the 3-year-old female who had elevated C18 and C18-1 and that’s just the patient who she ended up having chronic inflammatory response syndrome. And she was given cholestyramine, moved out of a moldy environment and improved. Looking into cholestyramine, all you’ve come across is its use for reducing cholesterol. And on a different note the Natural Treatment Centers for Environmental Disease talks about there being no scientific studies on it actually being able to remove mycotoxins from the body and how its success historically is likely to have been placebo. Can we share our knowledge about this and point us in the direction of some good information for further investigation?

Dr. Amy Nett: Yeah so, this is going into chronic inflammatory response syndrome, which again we’re not going to cover in this ADAPT course. It might end up being a one off. But cholestyramine and its use in binding biotoxins, really all of the research has been done by Richie Shoemaker and a small group of Shoemaker-certified physicians. So if you want to learn more about the role of cholestyramine and well call for binding biotoxins and the science behind it, I would suggest going to the survivingmold.com website. That’s Dr. Shoemaker’s site. He has a number of educational materials available. So he has written two or three books now, maybe three. I think three books now possibly. So those have a lot of information. He also has some educational DVDs that have a lot of information, and there have also been a few annual conferences. There’s one coming up in October down in San Diego, there was one last year in Phoenix, Arizona. All of the lectures were recorded so you can also get more information on chronic inflammatory response syndrome there.

 

So again there has been research. I’m not sure that much of it has been peer-reviewed published research. But some of it certainly has. So that’s a good starting place. But our experience with chronic inflammatory response syndrome is that we have seen improvements. So I have used well call cholestyramine and I’ve seen improvements both in symptoms and in lab markers. So placebo or not, there’s definitely some benefit to it in the setting of what appears to be mold-related illness.

 

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